Altra Via focuses on individual navigation and advocacy. For broader patient education, community, and disease-specific support, these established organizations are excellent places to start. We will continue to add to this list as our work develops.
Umbrella organizations that provide disease information, connect patients to community, and advocate for rare-disease research and policy.
National Organization for Rare Disorders. Disease information, patient assistance, and advocacy for over 7,000 rare diseases.
Toolkits, community, and resources for patients and families navigating rare and genetic disease.
The European rare-disease patient organization. Global rare-disease policy, patient community, and research.
Organizations that provide case-management support, advocacy, and help navigating access to care.
Support, information, and community for anyone affected by cancer.
Practical support, education, and advocacy for the family members and caregivers of people with serious illness.
Programs that help patients and families with the practical logistics of traveling for treatment.
These are independent organizations. Altra Via is not affiliated with, endorsed by, or a partner of any of them. We list them because they are established, trusted sources of patient support and education. Availability, eligibility, and current programs are determined by each organization; please confirm details directly with them.